https://www.mightymaxfoundation.com/contact-us daily 0.75 2021-05-12 https://www.mightymaxfoundation.com/contact-us-1 daily 0.75 2021-05-12 https://www.mightymaxfoundation.com/contact-us-2 daily 0.75 2021-05-12 https://www.mightymaxfoundation.com/contact-us-3 daily 0.75 2021-05-12 https://www.mightymaxfoundation.com/contact-us-4 daily 0.75 2021-05-12 https://www.mightymaxfoundation.com/contact-us-5 daily 0.75 2021-05-12 https://www.mightymaxfoundation.com/contact-us-tbgm5 daily 0.75 2021-05-12 https://www.mightymaxfoundation.com/contact-us-knlgn daily 0.75 2021-05-12 https://www.mightymaxfoundation.com/initiatives daily 0.75 2022-10-24 https://www.mightymaxfoundation.com/initiatives/mighty-max-foundation-fund-at-bch monthly 0.5 2021-07-07 https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1625680080358-3U9OE7JS1X4TVWQ8180B/BCH+initiative.png Initiatives - Mighty Max Foundation Fund at BCH - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.mightymaxfoundation.com/initiatives/blankets-for-babies monthly 0.5 2022-10-24 https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1666627327936-3AGQPQHW3OC6467PD4DA/2021+nicu.jpg Initiatives - Blankets for Babies - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.mightymaxfoundation.com/about daily 0.75 2021-11-27 https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1621385640559-U3YSD9AQSL0BQFVTT5VZ/Little+max..png About - max ryan turunen Max was born at 25 weeks with his triplet brothers Brooks and Hayes. Weighing just 540 grams (1 pound, 3 ounces) Max’s pretty blue eyes were still fused shut and his little legs were covered in soft peach fuzz. Since his first day, Max showed us what it meant to be strong, mighty and fierce. The moments are too many to count that we were told Max didn’t have a chance, but he changed all of those moments. He showed us how to live. Max lived his 11 months teaching us more lessons about life than we could ever begin to learn on our own. His long eyelashes and dashing blue eyes taught us to see the beauty in all the little things, to find the silver linings when the unimaginable is happening. His bright gummy smile when you walked in and said “Maxi boy” taught us to love those around us so fiercely that all you could do when you see each other is smile. His tiny fingers wrapped around your own taught you to hold on the the hope, to never doubt the drive to keep going, and to be together through the good and the bad. Max passed unexpectedly in April of 2021. He is remembered for his strength, courageous attitude, and will to keep going. The Mighty Max Foundation will continue to represent the legacy of Max and hopefully help others push through the fight. https://www.mightymaxfoundation.com/take-action daily 0.75 2021-07-07 https://www.mightymaxfoundation.com/pulmonary-vein-stenosis daily 0.75 2021-06-11 https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1621271710273-5QEAQAJF0KYVN2IGM58A/image-asset.jpeg Our Mission - pulmonary vein stenosis. At 3 months, Max was diagnosed with a rare congenital heart condition, Pulmonary Vein Stenosis (PVS). PVS is a rare and serious condition in which there is a blockage in the blood vessels that bring blood from the lungs back to the heart. The chances of PVS are approximately 1 in 200,000 and the development of effective treatments is still very scarce. https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1621383122002-KF27Q77SDLO9TOCTNCBS/boston.jpg Our Mission - boston children’s hospital. Fortunately, we found Dr. Ryan Callahan and his team at Boston Children’s Hospital. Dr. Callahan and the PVS team have been on the forefront to PVS research and are finding new and improved ways to give kids with PVS a chance at life. The funds brought in from Mighty Max will help the BCH team continue to research and develop treatments for PVS and hopefully one day aide in other institutions ability to help kids like Max. https://www.mightymaxfoundation.com/home daily 1.0 2022-01-17 https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1620957794200-M8C7VD95MKXAS4B5W1OK/20140302_Trade%252B151_0503.jpg Home - our mission. Mighty Max was founded to remember the life Max lived and help support the research Boston Children’s Hospital is developing for Pulmonary Vein Stenosis. https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1620957859517-TVAHUQWACNATJ2WMXQT8/20140228_Trade%252B151_0067%252B%25281%2529.jpg Home - live like max. Max’s life represents more than just a rare disease. https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1625681143834-MCJJDP0UIQ6SQZIWM0LY/Mountain+%282%29.png Home - mighty max foundation fund. Fund Goal: $100,000 Currently Raised: $20,437 Time Left: 2 years 6 months Want to help? https://www.mightymaxfoundation.com/blog daily 0.75 2021-10-15 https://www.mightymaxfoundation.com/blog/starting-here monthly 0.5 2021-07-23 https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1623892185574-RG7BVG8CINM8NCB715TR/Hayes.jpg Blog - starting here. https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1623892179927-C5I18I5DT0Q9DR7EYC5F/Brooks.jpg Blog - starting here. https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1623892192111-2VP02Y4Z8GTIY4BYU6HL/Max.jpg Blog - starting here. https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1623892244383-OF83HM4M3CURYK75RTQ5/family.jpg Blog - starting here. - When we got pregnant and found out we were having triplets, I decided to start writing things down. Feelings I had, complications we faced because I thought one day I might need to look back, or the babies might want to and learn about their journey into life. So, this most comes from that writing. Its nothing new, its nothing from the heart right now, its what happened when it was happening. Looking back on it, its crazy to remember where our babies A, B and C started and they sure showed their personalities from the start. https://www.mightymaxfoundation.com/blog/its-worth-a-try monthly 0.5 2021-07-23 https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1625104072727-BMIGU20MR5BQCNCIJ1I4/BCH.jpg Blog - it’s worth a try. - Two wings, small cabin, two pilots. A flight 1000 miles away. A new hospital, a new team of MD’s, one world renowned surgeon. Max can go into a heart surgery to repair the diseased veins in his heart. It’s not a fix all, it doesn’t end his battle, but it gives him a fresh start. He will come out with more things to go through and a number of medications to take going forward. As always, they all can have their side effects, but they can buy him his life until the disease stops. We can do this. “It’s worth a try.” https://www.mightymaxfoundation.com/blog/let-it-be-yours monthly 0.5 2021-08-04 https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1628118875791-7OCTV56JBO2B209R2DGR/mom+and+max.jpg Blog - let it be yours. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.mightymaxfoundation.com/blog/nicu-series-a-day-in-the-life monthly 0.5 2021-09-02 https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1630545488795-DA14KN1G0QRWCV1KF0HH/BLog+2+%282%29.jpg Blog - NICU Series - a day in the life. - The life of parents in the NICU was formed into 3 hours increments. 8 am, 11 am, 2pm, 5pm…. We spent hours… days… months living hour by hour, 3 hours by 3 hours. The thing about teeny tiny babies is that they aren’t supposed to be teeny tiny babies out in the real world. They’re supposed to be tucked inside a warm womb of their mom growing and developing to make it into the world. They’re not supposed to be touched, prodded, or poked. So in order to try to imitate the life in the womb, they’re put on “care times” in 3 hour increments. Every 3 hours our teeny tiny babies would get their diaper changed, rotated to prevent pressure spots, IV’s checked, feeds filled, and lightly touched by their mom and dad. https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1630545568303-4Z92J89FMZKK5TLXY02W/Blog+3.jpg Blog - NICU Series - a day in the life. - Pulling labs to check oxygen and CO2, blood tests, sugar levels and adjusting as needed. At 36 weeks getting echo’s to check for cardiac function and issues, things like PVS. And for our journey constantly discussing and deciding what to do for respiratory distress and chronic lung disease including steroid trials, ventilator changes, cpap masks, hi flow cannulas and reintubation. https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1630545627857-DP2WSAZJIBG6YTKV2KYT/Blog+%282%29.jpg Blog - NICU Series - a day in the life. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.mightymaxfoundation.com/blog/six-months monthly 0.5 2021-10-15 https://images.squarespace-cdn.com/content/v1/609bc51fbea84b53e135fd3c/1634302943667-JULCXB1XBKM3BOQLYAFD/turunen.3553.JPG Blog - six months. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.mightymaxfoundation.com/pvs-families daily 0.75 2021-10-29